We had a date. As soon as he hopped into the car, he showed me some new music he has been listening too…”Mickey’s Silly Songs” and “C is for Cookies” by none other- Cookie Monster.
We had a very full day planned. First things first. Chocolate Chip cookies were to be baked.
I’ve written about Brayden before here, here and here. Brayden is four now. His trache has been removed and only surgical scars remain there. But he is still a very sick little boy.
Right before Christmas he caught the flu. For a guy like this, the flu can be deadly. He was admitted to the hospital and put in ICU for a week. While there, they discovered that this flu infection had compromised his already weak immune system. He developed HLH. In patients with primary HLH, cells of the immune system, principally T cells and NK cells, don’t work properly to destroy infected or damaged cells as they should. Because of this, the immune system becomes overstimulated and over activated. The immune system then begins to damage the patient’s own tissues and organs, including the bone marrow, the liver and the brain.
The doctors suggested high doses of steroids to build his body up, only to be broken back down with chemo. His little body was so swollen from the steroids, it hurt for him to walk or to be held.
Brayden was released from the hospital weeks before the doctors predicted, because his mom could do everything the nurses were doing at home and because of his miraculous recovery rate.
The first days at home were rough for Brayden and Nina.
But look at this kid!
Brayden is a walking Miracle!
God has great plans for this little boy.
Brayden is courageous. He gets it from his mom.
Nina battled ovarian cancer for about ten years. She was told she would never be able to have children of her own.
One day Nina had an unbearable pain in her back. Immediately she went to her oncologist thinking her cancer was back.
She did not have cancer, but she was having a baby! This little baby boy was born many weeks too soon and had so many complications that the doctors didn’t give her much hope.
Nina has never left this child’s side. She has been the most powerful, strong, loving advocate for a child that I have ever seen.
Caring for a child like Brayden requires tube feedings, dressing changes, doctors appointments almost weekly, therapists, medicine…all without having her own transportation or family. Nina is Super Woman.
Well, this super woman was given a bit of kryptonite news…she has cancer again. This time it is in her bone marrow. Thankfully it’s been discovered early, but it is cancer….again.
As she was having to admit her four year old into ICU, she began her chemo treatments.
Having a four year old and no transportation, it’s been a blessing that her treatments can be done in a pill form instead of twice weekly intravenous visits. But it is still chemo. It makes her very ill.
The cancer in her bone marrow is causing fractures in her bones. And so much pain.
Nina is so strong, one might even call her stubborn as a mule. She has done everything and been everything for Brayden, but she needs help. A loving man has been brought into their lives and I thank God for him. He works during the day, so Nina has a full day by herself.
Nina is not going to ask for help. I need to remember that just because I don’t hear from her, doesn’t mean she isn’t calling out.
Thanks for dropping by! Please say a prayer for Nina and Brayden. I know they’d appreciate it.